“Let’s talk about the stigma and end it with education.” – Kenneth Monterroso on living with HIV

Can you share a little about your journey since your diagnosis and how it has shaped your outlook on life?

I was diagnosed with HIV in 2015. At first, it was a shock, but I quickly began educating myself and learned that, thanks to modern medicine, HIV is no longer a death sentence. Today, there are effective treatments available and it’s crucial to start them immediately. The medical goal is to prevent the virus from multiplying in the body, which is why early intervention is essential. Living with HIV means adapting to a new routine. Antiretroviral treatment must be taken daily – it’s a lifelong commitment, but it allows people like me to maintain a good quality of life. By keeping the immune system strong, it helps prevent opportunistic infections like pneumonia and tuberculosis. My diagnosis changed my perspective on life. I’ve learned to appreciate my health and take better care of myself – and to never take things for granted.

What inspired you to start speaking openly about living with HIV and being undetectable?

At first, it was difficult to talk about my diagnosis, but I soon realized that silence only reinforces stigma and misinformation. Learning that being undetectable means I cannot transmit the virus was a game changer – it gave me the confidence to educate others. I was inspired by the idea of helping people who might be struggling with their diagnosis or still believe outdated myths about HIV. If sharing my story can offer someone hope and clarity, then it’s worth it. 

What were some of the biggest challenges you faced, both personally and socially, after your diagnosis?

 The biggest challenge was accepting that my life had changed. While I could live a normal life, I had to be disciplined with my treatment and adapt to the uncertainty of what the future might hold. Socially, the biggest obstacles were stigma and misinformation, especially in romantic relationships. Many people still fear HIV or don’t understand that being undetectable means I cannot transmit the virus. Consistent antiretroviral treatment suppresses the virus to the point where transmission is impossible – even without protection. This fact is backed by science, yet misconceptions persist. In my last relationship, education and regular health monitoring reassured both of us, making HIV a non-issue. But too often, initial reactions are driven by fear rather than facts, which is why open conversations are so important in breaking the stigma.

What are some of the biggest misconceptions about HIV that you’ve encountered and how do you address them? 

One of the biggest misconceptions about HIV is that it’s a death sentence when people with HIV can live just as long as anyone else with proper treatment. Another common myth is that HIV spreads through casual contact like sharing a glass or hugging which is false. Many also assume that having HIV means looking sick, but with consistent treatment and a healthy lifestyle, we look and feel just like everyone else. Whenever I encounter these misconceptions, I address them with facts, education, and patience. Most prejudices stem from ignorance and the best way to combat ignorance is with accurate information. 

Speaking of ignorance, why do you think HIV and related topics are still taboo for many people? 

HIV still carries the stigma rooted in the science and perceptions of the 1980s. Many people associate it with specific risk behaviors, without realizing that anyone can acquire it. The lack of proper sex education in many societies further fuels fear and misinformation. Talking about HIV means confronting deep-seated prejudices, cultural beliefs, societal norms and even flawed public health policies. That’s why I always say: Let’s talk about the stigma and end it with education. 

How can people show better support and understanding for those living with HIV? 

The most important thing is to educate yourself and talk about HIV openly – without fear, shame, or stigma. Avoid discriminatory comments and invasive questions and listen without judgment. Treat people with HIV with the same respect as anyone else, without making assumptions or treating them differently. Support also means sharing accurate information and advocating for full inclusion in all aspects of society. This helps those affected feel less alone. A diagnosis doesn’t define a person’s worth, so it’s essential to surround yourself with supportive people. If possible, connecting with others who live with HIV can be incredibly valuable – sharing experiences helps build confidence, resilience, and self-esteem.